Today is World Autism Day. It is a day I take part in each year. Some of you may wonder why. I will tell you, I am a mom to two autistic boys. This is their story and for me to share. The only way we can make a difference is by sharing our story and help educate others.
Blake our oldest has Aspergers. For those who don’t know what Aspergers is think the movie rain man. Now dial rain mans button down about 20 percent. Blake isn’t as rigid as Dustin Hoffman’s character. He has extreme ocd, adhd and personality disorder. We have a lot on our plate with him. We hear about numbers, Obama, Martin Luther King and base ball to the point where most peoples ears would bleed. He wants to meet Oprah and ask her about some of her interviews. We love this dear boy more than anyone can imagine. We have watched him struggle with speech. Cry when we were forcing sensory therapy because it was scary to him. We cheered him on when he doing more things on his own. We have endured hours long tantrums because the cars weren’t lined up exact, his books were out of order and I made a stinking peanut butter and jelly wrong. Who knew the peanut butter went on top. I can say without the early interventions and my knowing an 18 month old shouldn’t be taking apart clocks and other appliances to put them back in order. I can say we would be in a world of hurt. Autistic children need the interventions and they need them started young.
Nathan has PDD-NOS. Means he is symptomatic. He has many of the characteristics and traits. Just not enough for one of the other spectrum labels. Nathan has insomnia, adhd and speech delays. He has fits the size of Texas over nothing. His sensory issues are major. He has a hard time getting all his points across. I wish I could bottle 1/4 of his energy and I could last a month. He is only happy with Mommy, Daddy and a few select people he trusts. He loves his school and routine there. He will sit next to kids to play but doesn’t engage them.
When we go out there is a big likely hood we will have a meltdown and tantrums. When I tell you kindly that there is nothing you can do, Please don’t stand there and continue to stare. It only makes matters worse. We ask that you don’t judge us and tell us that our children are spoiled. They are not. Sometimes these outings can be a bit over whelming. They don’t have social filters. We are working on that.
I know this isn’t just my family. I know this is 1,000 of families who struggle daily right along with us. I am sad when I read how families feel like they can’t do something because of your child with Autism. Give your child a chance eventually things click. We have felt the same way.
So with it being World Autism Day the Empire State Building and other national landmarks are going to light up the country and world blue. I am asking you to participate too weather you light a candle that blue, use a blue light sting of lights from Christmas, wear something blue or any other way. Take a picture and email them to me firstname.lastname@example.org I will be putting them all in a slide show.
You can read more about turning the world blue at Autism Speaks. There you can also find information on what signs to look for, local chapters, and other great information.
Autism’s statics are horrifying
1 in 110 children will be affected
1 in 70 boys will be affected
Let’s make a difference today. Thank you for supporting a great cause.