Today is the day we ask the world to light it up Blue for Autism Awareness. Our journey with Autism has not been so easy always. There are days that still that I would rather sit in the corner and drink a bottle of wine instead.
Here is some of our journey , though some has changed. This was written 2 years ago.
Blake our oldest has Aspergers. For those who don’t know what Aspergers is think the movie rain man. Now dial rain mans button down about 20 percent. Blake isn’t as rigid as Dustin Hoffman’s character. He has extreme ocd, adhd and personality disorder. We have a lot on our plate with him. We hear about numbers, Obama, Martin Luther King and football and star wars to the point where most peoples ears would bleed. He wants to meet Oprah and ask her about some of her interviews. We love this dear boy more than anyone can imagine. We have watched him struggle with speech. Cry when we were forcing sensory therapy because it was scary to him. We cheered him on when he doing more things on his own. We have endured hours long tantrums because the cars weren’t lined up exact, his books were out of order and I made a stinking peanut butter and jelly wrong. Who knew the peanut butter went on top. I can say without the early interventions and my knowing an 18 month old shouldn’t be taking apart clocks and other appliances to put them back in order. I can say we would be in a world of hurt. Autistic children need the interventions and they need them started young.
Nathan has PDD-NOS. Means he is symptomatic. He has many of the characteristics and traits. Just not enough for one of the other spectrum labels. Nathan has insomnia, adhd and speech delays. He has fits the size of Texas over nothing. His sensory issues are major. He has a hard time getting all his points across. I wish I could bottle 1/4 of his energy and I could last a month. He is only happy with Mommy, Daddy and a few select people he trusts. He loves his school and routine there. He will sit next to kids to play but doesn’t engage them.
The parts of our Journey that have changed in the past 2 years. They have been able to back off some of therapies. They are more composed for the most part in public. Though they do still get overwhelmed with large crowds. They still don’t like loud noises. They have an understanding of who they are and what their limitations are. Though we always try and break those barriers. Blake is on honor roll. He is still into all the same things listed above. Nathan is all about star wars and Lego’s.
They are loving living in Europe as they are seeing history in real life. They have seen roman ruins and other important parts of history. They can’t get enough. While we don’t always understand the language. We use Rick Steve’s and other resources for them
about this history the site we are visiting. They love it.
So today we will Light it Blue for World Autism Awareness. We ask that you educate yourself by going to Autism Speaks